Evaluation Day

So I spoke with Dr. Mervis this morning, and Tyler and I are planning to take Maggie to Kentucky on May 12th. I’m pretty excited about it. I still can’t believe we were able to get an appointment with her so quickly! I’ll write more about the tests and things they’ll be doing when I have a chance later.

We went to look at houses last night, and we’ve decided to make an offer on the blue Charleston style in the Northeast. It would be perfect for our family, though it does lack the character I was hoping for. I really do think it is the best option we’ve seen as far as our most important needs (space, location, yard, condition). I was worried Tyler wouldn’t like it, but he did! As soon as we hear back from our mortgage guy about when we can do our prequalifying letter, we plan to make an offer. Yay! Pictures will be posted later.

Maggie has her assessment with BabyNet today at 2 to determine if/how often she needs speech, occupational, and physical therapy. I’m nervous about it, for some reason, but I’m crossing my fingers that it goes well!

They didn’t evaluate Maggie today because she is already eligible for the program based on the WS diagnosis. We just filled out paperwork, Maggie charmed her case worker, and I heard about all of our options and what we do next, etc. The weirdest part was that I had to tell the case worker about WS. I was so proud of myself, giving her all of the information about Maggie’s diagnosis, what WS is, and what we know are common WS difficulties. Once we choose which provider we would like to go with, someone from that organization will come out and do her basic evaluation, then they’ll assign her physical, occupational, and speech therapists, and they will do the in depth evaluations.

3 Responses to “Evaluation Day”

  1. Julie Says:

    Hi my name is Julie. I came across your site by chance. I have a 2 year old son Noah who has WS. Our situation was similar to yours when we found out. No signs, the doctor just heard a murmur. I just want to lend my support to you. I understand what you mean about not wanting to be a part of the club but you will find out that sometimes other parents really get how you feel. It sounds like maggie is doing great. I have not been to see Dr Mervis, but I met her at a seminar. She really knows her stuff. Good luck.

  2. Amy Says:

    Wow, that is great! A new house, your first evals, and an appointment with Dr. Mervis. Pretty soon, and unfortunately, you will find therapy to be “old hat.” I remember Avery’s first eval. day, I was super nervous! I had no idea what to expect out of that type of relationship. It is a unique mix between business and support and friendship because they are ultimately there for your child, but you often become friends along the way (or not). Sometimes personalties don’t mix with you or your provider and your child. Well, you’ see soon enough.

  3. Penny Says:


    My name is Penny. I talk to Julie and Amy all the time. We are Blogger buddies. I ahve a son, Keith who is 4 1/2 with WS. We also see Dr. Mervis and have found her to be a wonderful resource for us. Maggie is beautiful and sounds like she is doing just great. If there is anything I can do for you along your journey, please feel free to let me know.

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