Walk like a (wo)man


Oh my gosh, I can’t even describe how amazing today was. Maggie has been *almost* walking for months. She could pull up on furniture and kind of cruise, and even stand up a little by herself, at the end of April. So, we were pretty confused as to why she still wasn’t walking when she hit her 14 month birthday, when she was already cruising at 11 months.

On Wednesday, we had her Physical Therapy evaluation, and Maggie qualified for PT. The therapist said that Maggie probably wasn’t walking because her trunk (abs, lower back, etc), neck, and ankle muscles were weak. She said you have to be able to hold yourself upright to walk, and leg strength isn’t enough. So, today, Joe Mac and I worked with Maggie to get those muscles stronger. We had her doing little baby sit ups on the floor and in our laps, and we worked with her on bending forward at the waist and then raising back up. Now, I’m not saying this one afternoon of exercising is what made her walk, but I’d like to think it helped :)

Well, this afternoon, during her Early Intervention therapy, while Tyler and I were both with her, she was standing by herself better than she ever has. She hasn’t even been standing much lately…to the point where I thought she had forgotten how. And today, she was standing straighter and more balanced than ever, for up to 10 to 15 seconds at a time. Then, once when she was standing, she took a step. Tyler and I (plus her EI and the girl she brought who was training), all squealed so loud and clapped so loud that we scared Maggie, and she wouldn’t do it again during the rest of the session. I was smiling so much that my face hurt, and I had tears in my eyes. I was so proud of her! Her EI got teary-eyed as well, because she knows how hard we’ve been working with her on the walking. It was so great!

So tonight when we put Maggie to bed, I was holding her, and kind of dancing with her to “Twinkle Twinkle Little Star” as performed by Glow Worm, and I just looked at my little baby girl, who is fast becoming my big girl, and I got teary-eyed again. Ever since getting the diagnosis, I wonder if she’ll be able to be independent, if she’ll be able to “stand on her own.” I try to not get my hopes up too much, because I want to be realistic, and I know she has some delays. But this little girl continues to amaze me all the time. She is so motivated, and she’s such a little fighter. I am so proud of her. My heart and my head are just so full of emotion…about the walking, the imitating, the words she’s starting to say, and just about her in general. I never imagined I could love someone this much, and I never imagined that these little things that we take for granted every day, would be so wonderful and magical and mind-blowing to see my daughter doing for the first time. Growing up with a family member who is disabled, I know how tough things can be for an individual and a family. I am so thankful for Maggie, and I’m so thankful for how well she is doing. I never thought that my child would have a disability. I never thought that my child would have delays, or health problems. But now that I know she has WS, and I know that she is doing so fantastic with all things considered, I really appreciate every little victory so much more. Today, she showed me that she can stand on her own :)

I love you, baby girl :)

So, a quick update on other parts of our life (which all pale in comparison to Maggie’s milestone)…Tyler’s physical went great and he’s in pretty much perfect health according to the doc; Maggie is becoming a ninja warrior in the battle against sleep…she can evade sleep (naps or overnight) better than anyone in the world, which makes it hard to understand how she comes from the same genes as Tyler, who could fall asleep during a fireworks display; and I’m making an appointment with the eye doctor soon to see if my headaches are being caused by eye strain, as my parents and husband have deduced. Also, we scheduled our next trip to see Dr. Mervis in November, so I’m really looking forward to that.

And thanks to Tes and Julie for the possible sleeping situation solutions. We’re hoping that soon we’ll have everyone in our house sleeping soundly, because currently, the only one in the house who is well-rested is the cat. :)

I’m hoping to get caught up with all of the other blogging mommies this weekend…hope everyone is doing well, and I can’t wait to see how all the kiddos have been lately :)

5 Responses to “Walk like a (wo)man”

  1. Nancy Says:

    Woo hoo! Erik began walking a little after that, if I remember correctly (approximately 17 months). I bought him Pipsqueakers shoes (http://www.pipsqueakers.com/), which squeaked every time he stepped, and he loved them. Something you might try!

    Congratulations! That’s HUGE!

  2. Granny Says:

    Well, I don’t have to worry about my contacts drying out anytime soon! I’m so proud of Maggie, but I am IN AWE of my wonderful daughter! By the way, you were the best at fighting sleep—Maggie comes by it honest.

  3. Julie Says:

    Hooray Maggie!! Noah also has issues from lack of trunk control. I think his was made worse early on because of having open heart surgery. Still it is something we struggle with but he gets stronger everyday. She sounds like she is doing great. You should be so proud. Glad I could help with the sleeping stuff. Another bit of advice, if you have a cat keep it away from her at night. Ours decided to crawl in bed with Noah at 3:00 the other morning. It woke him up and he was terrified. Sometimes animals are worse than kids.:)

  4. Great Aunt Donna Says:

    hey perrin!
    sorry i just got to read the last 2 blogs today. an even cheaper solution to the snoring is a “wedge” pillow, robert used to DRIVE me CRAZY!!! and i WOULD hit him during the night and i DID NOT feel bad for it!!, haha .
    anyhow it works wonders!! we were sooo glad to see miss m this wkend and we are very proud of her too! i agree w/ your mama -i am in awe of you too!-as ive told you before . you have turned out to be the best and most loving mama, maggie kate is lucky to have you as well my darlin!!!
    and DITO about the beach trip–is it october yet?????

  5. Penny Says:

    Yeah Maggie!

    I am catching up on Blogs myself. Is everyone ok? You haven’t Blogged in a while. I hope all is well.



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